paintergal
10-17-2006, 12:39 AM
This is all new to me so if anyone can help it can't be worse than the 14 doctors I have been to. When I was 18 i would become shaky inside and out at work maybe every couple months. As the years went on the shakiness became much more. I now work in a busy nursing home as a CNA. 6 yrs ago I got pregnant with my son. The shakiness became extreme muscle weakness in my legs, rapid heart rate. I ended up having a hyper thyroid. But that came and went and over the last few years I have daily bouts of my legs giving out my arms going limp, 160 plus heartrate. In the last few months it has turned into times where I can barely move at all, can't speak, can't swallow. My hands and feet tingle, my tongue tingles. I sometimes can't grasp for words or even get foggy. I have been to 3 neurologists, 4 heart specialists, 4 different family doctors, 2 blood doctors, and a stroke specialist. I have had an MRI, MRA, Cat Scan, EKG, EMG,TEE, Echo, Bubble echo,sleep study, heart monitorssssss, Brain scans with those little sticky things in my hair. I have a a muscle biopsy. All have been normal except occasional low K., skipped beats while my heart is fast., and a calcium deposit in my brain I am currently going to Hershey Medical Center...I have them stumped as well. They thought it was hypokalymic periodic paralysis dis., but the biopsy was good, They are now tossing around early MS. As time goes on this all gets worse, although currently I am on a 1 1/2 month rest, it comes and goes. I am on Lithium,&Acetozolomide .
Could it be the lithium even though my levels are normal...I have been on and off it for 15 yrs.
Thanks for listening Any help would me great,
Melissa
Could it be the lithium even though my levels are normal...I have been on and off it for 15 yrs.
Thanks for listening Any help would me great,
Melissa